The profession of Sonia and Patricia, two Galicians with ataxia telangiectasia, to make their illness seen

Both will take part in a half marathon in Fene (A Coruña) 19 solidarity runners will push their particular chairs They search to get donations for a remedy or therapy

Within the favored races which are celebrated all around the nation there are particular tales like yours, like that of Sonia and Patricia. These two younger Galicians, affected by a illness known as ataxia telangiectasia (AT), will take part this Sunday in a half marathon to be held in Fene (A Coruña).

They will accomplish that with the goal of constructing seen the ultra-rare illness that they endure from and that solely 40 different individuals in Spain endure from. They will take part within the take a look at along with the remainder of the runners, though they may sit of their tailored chairs. 19 solidarity runners will make them ‘fly’.

Sonia Orjales, from Ferrol (A Coruña), is 20 years outdated. And Patricia Blanco, from Lalín (Pontevedra), 31. Both have used wheelchairs since earlier than their adolescence, however ataxia telangiectasia has progressively worsened their scenario.

Patricia is 31 years outdated and is from Lalín.AEFAT

Because this illness, along with being very unknown, is neurodegenerative. This generates a critical progressive bodily incapacity for individuals who endure from it, in addition to immunodeficiency, respiratory issues and a higher predisposition to most cancers.

Raise funds to battle the illness

The goal of those two younger ‘warriors’ is to deal with this illness, which nonetheless has no remedy or therapy. Also, elevate funds to put money into analysis.

And, for that reason, the XXXVI Memorial Adolfo Ros-Volta á Ría half marathon that takes place this Sunday in Fene (beginning at 10:00 a.m.) is an effective event. And it’s that all through the 21 kilometers that the take a look at lasts, the individuals will cross via as much as 4 city halls (Fene, Ferrol, Narón and Neda).

Both younger ladies belong to Aefat, an affiliation created in 2009 and which brings collectively households with youngsters and younger individuals affected by this illness in Spain.

Sonia is from Ferrol and is 20 years outdated. AEFAT

It is thru the web site of this affiliation the place donations might be made (or via Bizum 01274).

Sport, a ‘shot’ of vitality for them

It will not be the primary time that each have participated on this half marathon. They already did it in 2019. In addition, they usually attend massive marathons with the Zurich Aefat Team, created by the affiliation in 2017.

“Participating within the races constitutes a motivating and inclusive exercise for these affected, because it permits them to normalize their scenario, reside with different households and, above all, share a optimistic expertise with the solidarity runners who push their chairs”, say from this Aefat .

The crew of runners that can push their chairs via Ferrolterra come from completely different sports activities golf equipment in Galicia, similar to ‘Pasa ou Entorna’, ‘Noitebra’ or ‘Atletismo Deza’.

Patricia and Sonia are the one two individuals affected by this illness in Galicia.